Ukrainian-American Birth Defects Program Liaison
September 4-15, 2000
Today one of the ongoing activities of the Ukrainian Alliance is our partnership with the parental support groups in Ukraine. First of all our concern is to reduce informational isolation of parents because of abscence of Internet access and educational gap related to electronic informational resources use. This is the field where Alliance closely cooperates with the IREX Internet Access & Training Program.
The 12-hour-training course for parents of children with PKU and cystic fibrosis was conducted this September in Kyiv. The audience received some knowledge on basic Internet technologies and Internet service as well as on principles and protocols of electronic and Web mail use. The subject of the last lesson was information search using various search engines.
Unfortunately, the opinion that everyday Internet use is too complicated for lay people who are not educated in a special way is still popular in our society. I hope that impressions of some participants of Internet training course given below would change the opinion of pessimists and diffident persons:
Mrs. Olena Klindukhova, mother of a 17-year-old PKU affected child:
"It is very interesting, easy to understand and easy to work with. I have learned a lot and can now use Internet without any help. I have even created my own e-mail box! Thank you very much for conducting such a useful training course."
Mrs. Alla Lazarenkova, mother of a 15-year-old PKU affected child:
"Thanks a lot for creating such a training center. It is a great support at our time. It opens to us the shortest way of searching information and provides us with knowledge we desperately need now".
Mrs. Lyudmyla Khandus', mother of an 11-year-old PKU affected child:
"I have been told that it is very difficult to use Internet, but now I know that it is not true. It's so amazing and not hard at all!"
According to the old saying, "The door opens for one who knocks".
Mrs. Mariya Makovska, IATP Program teacher, with her students
Group picture of IATP students - members of the Ukrainian Alliance
This site offers information
mostly for educational purposes. This site is not intended to alter health
care protocols nor to serve as a sole source of medical information.
Please read full disclaimer.
Always seek the advice of your local health care provider.
Copyright 1998 - 2002
All rights reserved.