Omni-Net Ukraine Birth Defects Prevention Program
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International Birth Defects Information Systems Omni-Net Ukraine Birth Defects Prevention Program
Mission: Amelioration, Prevention and Genetic Counseling concerning Birth Defects, Genetic Disorders, Congenital Malformations, Anomalies and Developmental Disorders

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  • Establish birth defects surveillance systems, treatment and prevention programs based on international standards.
  • Prevent developmental disabilities related to institutionalizations with emphasis on early interventions.
  • Promote creation of parental support groups.
  • Promote medical education, training and research through national and international partnerships.
  • Estabilish electronic information resources for dissemination and tele-consultations.

Birth Defects (BD) in Ukraine

Lyubov Yevtushok, M.D.
Medical Coordinator
Omni-Net Ukraine Birth Defects Prevention Program

Population Based Surveillance
Rivne and Volyn Oblasts
Year 2005

Live births (L) 26492
Stillbirths (S) 121
Total births 26613
Number of terminations of pregnancy (ToP) for birth defects (1) NR


Birth Defects Number of cases Rates * 10000
Livebirths Stillbirths ToP* L+S L+S+ToP
Anencephaly (A) 0 7 25 2.64 N.A.
Spina bifida (A) 6 2 19 3.02 N.A.
Encephalocele (A) 1 1 4 0.75 N.A.
Microcephaly (2) 8 0 NR 3.02 N.A.
Arhinencephaly / Holoprosencephaly 2 0 NR 0.75 N.A.
Hydrocephaly 14 4 NR 6.79 N.A.
Total Anophthalmos / Microphthalmos
(include unspecified) (2)
4 0 NR 1.51 N.A.
     Anophthalmos (2) 0 0 NR 0.00 N.A.
     Microphthalmos (2) 4 0 NR 1.51 N.A.
Total Anotia / Microtia
(include unspecified)
7 0 NR 2.64 N.A.
     Anotia 2 0 NR 0.75 N.A.
     Microtia 5 0 NR 1.89 N.A.
Transposition of great vessels 8 0 NR 3.02 N.A.
Tetralogy of Fallot 3 0 NR 1.13 N.A.
Hypoplastic left heart syndrome 6 0 NR 2.26 N.A.
Coarctation of aorta 4 0 NR 1.51 N.A.
Choanal atresia, bilateral 0 0 NR 0.00 N.A.
Cleft palate without cleft lip 13 1 NR 5.28 N.A.
Cleft lip with or without cleft palate 25 0 NR 9.44 N.A.
Oesophageal atresia / stenosis with or without fistula 6 2 NR 3.02 N.A.
Small intestine atresia / stenosis 5 0 NR 1.89 N.A.
Anorectal atresia / stenosis 4 0 NR 1.51 N.A.
Undescended testis (36 weeks of gestation or later) 128 0 NR 48.32 N.A.
Hypospadias (3) 10 0 NR 3.77 N.A.
Epispadias 0 0 NR 0.00 N.A.
Indeterminate sex 0 0 NR 0.00 N.A.
Renal agenesis 0 3 NR 1.13 N.A.
Cystic kidney 7 2 NR 3.40 N.A.
Bladder exstrophy 1 0 NR 0.38 N.A.
Polydactyly, preaxial 11 0 NR 4.15 N.A.
Total Limb reduction defects (include unspecified) 4 0 NR 1.51 N.A.
     Transverse 1 0 NR 0.38 N.A.
     Preaxial 2 0 NR 0.75 N.A.
     Postaxial 1 0 NR 0.38 N.A.
     Intercalary 0 0 NR 0.00 N.A.
     Mixed 0 0 NR 0.00 N.A.
Diaphragmatic hernia 3 1 NR 1.51 N.A.
Total Abdominal wall defects (include unspecified) 12 0 NR 4.53 N.A.
     Omphalocele 5 0 NR 1.89 N.A.
     Gastroschisis 7 0 NR 2.64 N.A.
Prune belly sequence 0 0 NR 0.00 N.A.
Trisomy 13 (2) 3 0 NR 1.13 N.A.
Trisomy 18 (2)  2 0 NR 0.75 N.A.
Down syndrome, all ages (include age unknown) (2, 4) 31 2 NR 12.46 N.A.
     <20 7 0 NR 26.84 N.A.
     20-24 1 0 NR 0.96 N.A.
     25-29 6 0 NR 7.74 N.A.
     30-34 7 0 NR 17.53 N.A.
     35-39 5 2 NR 47.75 N.A.
     40-44 5 0 NR 130.21 N.A. 
     45+ 0 0 NR 0.00 N.A.


N.A. = not available
* = Terminations of Pregnancy
(1) Number of terminations of pregnancy (ToP) for birth defects is not reported (NR), except for NTD
(2) Clinical diagnosis only; with photodocumentation or measurements documented
(3) Includes penile, scrotal, and perineal hypospadias only
(4) Two ToPs with Down Syndrome confirmed by amniocentesis (maternal age 37 and 38 years; karyotype of both fetuses 47,XX,+21)
(A) More details in NTD table

Data reported to International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR).




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